- Welcome To AVNSupport.org
- What is AVN?
- Coping With AVN Pain
Welcome to The ON/AVN Support Group International Association , Inc.
We are a support system for AVN patients, by AVN patients…getting better, one step at a time!
If you have come to our web site, chances are that either you, or someone you know has AVN and you are seeking knowledge and some understanding. You’ve come to the right place! We are the world’s first and so far only non-profit Association for patients with this painful and disabling bone disease. Our goals are to help people the world over to learn about AVN, and to lend some moral support to our members.
Also, it is our hope that we will one day soon get a very important research project off the ground with a major orthopedic hospital in New York City. It is a huge undertaking, but we hope to find some answers than can lead to a cure for this ailment.
What do the photos of clouds represent? These beautiful pictures of cloudy skies represent our message to the world that we should not focus on the clouds, but focus instead on the light behind them. This is what we hope we represent to all those who suffer from AVN. Through our combined caring and sharing, we are a powerful light behind the dark and often stormy clouds of illness and severe chronic pain. Through hard work, unshakable faith, and most importantly, by the grace of God, we are here for every man, woman and child who has to cope with AVN.
What is AVN?
AVN is short for Avascular necrosis, a degenerative bone disease that is also known as Osteonecrosis. We shorten all of that to simply “AVN”, but no matter what it is called, it is a very painful and debilitating bone ailment. AVN occurs when the blood supply to a joint or bone is suddenly compromised. When that happens, the bone begins to die.
Once considered rare, more than 20,000 new cases are diagnosed in the US alone each and every year. It is a condition that can strike anyone regardless of gender, race, country of origin, or age. There is no known cure for it.
Come join us to learn what the most prevalent cause of AVN is at this time. The answer may be disturbing to you, as it has to do with a very commonly prescribed family of medications.
Just as with any other disease, there are definite stages with AVN, from very early stage one all the way to total joint collapse. When you join us, you will learn about these stages and how they can impact your life. You will also learn how early detection is very important, as we guide you through our own combined experiences and acquired knowledge.
Coping With AVN Pain
AVN can be an excruciatingly painful ailment. The main problem is that pain levels tend to fluctuate quite often, which tends to confuse both patient and some doctors alike. You will learn what causes these great fluctuations, why they occur, and how to cope with doctors, as well as family and friends, who don’t quite understand what AVN is and how it can affect a person. Our belief is for every AVN patient to become his or her own best patient advocate. Our members learn what this means, and how to accomplish it.
No known drug, medication, tonic, or supplement can cure AVN, according to our sister site, The National Osteonecrosis Foundation (NONF). We, as the patients themselves, can attest to this. Ours is a long and often frustrating road that can lead from doctor to doctor as we try to halt the advance of this disease, or to cope with it. Most treatments for it are surgical in nature, and none of them are ‘guaranteed’ to work.
Our massive informational libraries are full of information on the various surgical treatments for AVN. And, you can meet others with AVN – your fellow Association members -- and talk with them about all kinds of treatments, results, trials, etc. Come join in on our message board and our chat rooms as you expand your knowledge base on AVN in an atmosphere of true understanding and caring.
In order for us to continue being a beacon of light and hope for sufferers of AVN, we need to ask our members to please contribute toward a subscription fee of $20/year. Compared to many other organization membership fees, we feel we are asking for very modest amount. We tried to keep it as low as possible because we know what AVN can do to a family's financial health. Our subscription rates amount to about 5 cents a day, but those pennies make the difference between us being able to be here for you or not.
If you do decide to join us, please click on the tab marked "Memberships" toward the top of the main page. After you click on the Subscribe button, please fill out the form and choose your preferred method of payment, either our convenient PayPal option (you do not need a PayPal account of your own), or send in your check or money order to us at the address listed on the Check by Mail payment option page. Please make sure to include your email address on the Memo field of your check. Please note: if you live outside of the US, we ask that you do not send a personal check. We are sorry, but our US banks will not accept checks from foreign countries. We respectfully remind everyone not to send cash through the mail.